Yesterday it took three adults (Mark, Dad, Mom), one dog (unhelpful), a wheeled office chair (helpful), and lots of pauses to get me out of the house and into Mom’s waiting car. During one pause we held hands in the kitchen and Dad prayed…strength for today and hope for tomorrow.
By the time my overburdened Sherpa (Mom) and I had made it to my regular treatment chair I had risen from my wheelchair twice…once to get weighed and once to transfer from my wheelchair to regular chair. I was getting my blood pressure checked so I asked for my pulse ox. It was at 79. I was immediately given more oxygen and my nurse came down for a consult.
Mark and I had a pretty scary time this weekend not knowing what to do when I couldn’t catch my breath, my heart was racing, and I was throwing up. We were rather at a loss. Getting me to the ER seemed like quite an endeavor and we weren’t even sure what they would do there. Eventually the panic passed and I was able to breathe in bed.
We told my nurse about all this and told her that my Doctor Uncle George suggested we look into palliative care. So shortly after our debriefing with my nurse, she got us a referral for a palliative consult.
This is where our prayers were answered. At the end of treatment I met Dr. Mulder who happened to be in the building and happened to have a cancellation. Dad was able to be there along with Mom and me. Dr. Mulder’s expertise is palliative care and he immediately switched my pain meds to help my breathing and my appetite. His manner was perfect. He was doctor and pastor in one. He also prescribed a steroid to help my breathing. I’m also on a bit more oxygen.
He thought I would see a difference within a week, perhaps days. This morning I came downstairs unassisted and took up residence in my favorite chair. Mom was a little floored. I have had very little gasping for breath and can walk where I need to, if slowly.
This gives me great hope that I will feel comfortable during the holidays while my new chemo gets going on those cancer cells. Thank you dearly for all of your prayers.